There is always hope

Author’s note: This blog was meant to be about hope; about recognising the progress of your self or loved one. I wanted to acknowledge the help I have received and how important & invaluable that help is. It was never meant to end up quite as gushy and mushy as it has! However: credit where it’s due and all that… 

Survival of the Weak

I survive

but I do not overcome.

I go on living

but I die.

I manage

but I really do not cope.

I go on smiling

while I cry.

 

I survive,

but it isn’t quite enough.

I fight the fight

to no avail.

I endure

but I do not persevere.

I try my best,

but I fail.

Taken from Chapter 7: A Sad and Sorry State of Disorder

Now available for pre-order

 

This is a poem I wrote many years ago, back in the days when I agreed with many professionals that there was no hope for someone ‘like me’. Back in the days where one day blurred into another with a sluggish trail of failure and misery in their wake. Back in the days when I gave up even trying not to fail because I couldn’t stand to be the bearer of anymore disappointment, either for myself or those who loved me. 

Sometimes, when I read my poems now, there is a response in my gut that recalls, exactly, the feelings that prompted the poem to be written. Like the faint voice of an old, familiar companion it stirs up emotions and sensations that have brought me to the brink of death.

Needless to say; it is a most uncomfortable feeling, and yet I am grateful for my unconscious determination to remember on my behalf. In a split second my heart plummets, to those terrifying depths, drawn by the familiar song – almost like a war-cry. But when my heart surfaces from this involuntary plunge – when it returns to the relative safety of ‘now’ – it heaves the biggest sigh of relief, and of gratitude. 

When I read poems like this I hurt but I also rejoice, because the devastatingly and painful days that inspire this kind of poetry are no longer a regular feature of my life.

My book, A Sad and Sorry State of Disorder – A Journey into Personality Disorder (and out the other side) talks specifically about management and not recovery. I don’t consider myself cured, or better. I am, without a doubt, better than I was and as long as I can keep saying that, I am happy with my progress. There may come a day when making sense of the world around me becomes natural and effortless; where I don’t have to second guess every feeling or emotion (of my own, or someone else’s); and, where I don’t have to fight or struggle to contain anxiety or paranoia so as not to unleash the beast within. These days may come, but in the meantime, knowing that the darkest and most hellish days are behind me is enough to keep me fighting this worthy fight! 

Whilst I try not to dwell on how bad life once was, I do believe I’d be doing a disservice if I did not acknowledge how far I have come – and I cannot do one without the other. It would be a disservice to myself to ignore or dismiss the gut-reaction I experience when I read one of these poems; the person who wrote the poems is the same person that fought tooth-and-nail, against the odds, for a second (it was actually my last) chance at life: I cannot disregard this.

It would also be a disservice to anyone else whose life is impacted by borderline personality disorder; anyone who believes there is no hope either for their self, or for someone they love and care for. I believe that people need to know that however dark and long the tunnel may appear, there is always light at the end. You don’t need to be strong, or have all the answers (or any answers at all); you just need to be really bloody brave, and keep believing in the light you can’t yet see.

I have come an incredibly long way, from the shy and terrified person I was when I was first referred to a complex needs service. For years I could barely speak in therapy, and it was several weeks before I began to speak freely in the Therapeutic Community. I have changed, almost beyond recognition, as has my life.

It is a long journey, and I would not have made it this far without the tremendous help I have received along the way. There are too many people to name individually in this particular blog; friends, family, peers and professionals have all helped me to get where I have managed to get to date. But today, in the spirit of Mother’s Day (which was actually yesterday!)  I will name one: Lizzie.  Dear Lizzie! 

Lizzie has been an amazing friend, supporter, believer, carer, and mother to me. She has walked beside me every single, painful step of the way. She has gone far above and beyond the call of duty . She took up the mantle of ‘mother’ and carried me, although I was not hers to carry. She has loved me unconditionally and embarked on the darkest of journeys with me. Neither of us knew a single thing about borderline when we began our journey together; we learned as we went along and Lizzie has remained stalwart throughout. She is my biggest fan (along with my wife Dawn), and although she cannot remember what my book is about, she promotes it tirelessly to friends and family. 

I have a feeling that when Lizzie reads some of my poems, she too will have a gut-response that throws her back, momentarily, to the dark days. And I am sure that she, just like me, will acknowledge these poems as part of who I am, and be grateful that I no longer write poetry quite like I used to. I know that when it is published, she will read my book as though for the first time, and feel pride at the journey I have been on. I know this because she is always proud of me, but nowhere near as proud as I am of her.

It takes a lot of guts to embark on a dark and terrifying journey for oneself, but it takes a damn sight more to hold someone else’s hand and travel with them, for them. I hope all the ‘mothers’ and all the carer’s who may read this feel encouraged and validated – whatever stage in your loved one’s journey you may be at, I hope you can believe that there is light at the end of the tunnel.

I will never take for granted the help and support I have received in order for me to get to this place of self-awareness and self-management. I am also well aware that any significant unwelcome change to my life as it is now could be catastrophic for my current equilibrium. It is hard to be smug when life is so finely balanced, but that doesn’t stop me from being proud of the changes I have managed to make, with the  unwavering support and care of many along the way. 

 And thank you Lizzie, from the bottom of my heart.

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